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COL6 Fund is a registered 501 (c) (3) non-profit raising money to cure Collagen VI-related dystrophy, a rare congenital muscular dystrophy.
Collagen VI-related dysthrophy is a rare and understudied muscle-wasting disorder.
COL6 Fund was founded in 2020 because there are only a handful of researchers, thousands of children and still no treatments.
The technology and science are here, but the funds to direct research are not.
